Click here to join the march!

The 2018 Disability March is now open for your entries! We started the Disability March in 2017. As we did last year, we are “marching” online via this blog in solidarity with the Women’s Marches around the country and to draw attention to the specific threats we are facing as disabled people. Each entry in…

Resist Inequality!

I’m a 70 year old retired teacher, volunteering for my church,  babysitting my two grandkids, and helping at their school.  I became a bilateral amputee in 2003, am deaf (but now hear with a cochlear implant), and am immuno compromised. The recent tax break for the rich takes away my deductions for medical expenses, and…

Childhood Brain Cancer Survivor and Epilepsy warrior

34 Childhood Brain Cancer Survivor, 1984-1992, 1 reoccurance and 4 brain surgeries. Today I am stable though and my main long term side effect is epilepsy and memory loss. My social security disability is depended on for my health expenses since there are so many with treatments, appt., and most of all 6 prescriptions daily….

Too old to make up for any changes to medicare or social security

I am a diabetic in my late 70’s, and have had a stroke and a heart attack in the past 10 years.  I am lucky to have had three great children and two amazing granddaughters.  The oldest just started her second semester at the University and the  younger girl is a sophomore in HS.  I am also…

Artist with CFS/ME

For the past 6 years, I’ve been disabled with a severe neuroimmune metabolic chronic illness called CFS/ME. My illness is in the severe category. This means I am mostly bedbound and almost always housebound. CFS is often very disabling. Severe CFS (like I have) is estimated to produce levels of disability comparable to late-stage AIDS. Yet the government does not provide…

Marching Against Misogyny

I’m joining the Disability March so that people can see the side of me that isn’t readily visible on social media. It’s not that I hide my chronic illness — and the chronic pain that goes along with it.  I write openly about being disabled from an autoimmune disease (Sjogren’s Syndrome) that apparently presents in…

Invisible No More!

#TimeForUnrest #PwME #SevereME I have several invisible illnesses including ME (Myalgic Encephalomyelitis) and NMH (Neurally Mediated Hypotension). I got sick in 1990 and became unable to work in 2000. I join this Disability March online in solidarity with all the other folks who need to be seen and heard. We will not accept mere crumbs…

Will Work for Health Insurance

When I became critically ill 10 years ago, I realized that I would no longer be insurable in the private market. Never. I also realized that I would be chained to my employer for the remainder of my working time for the coverage. My many disabling conditions have stacked one on top of another. Now,…

Why I March

I’m participating in the #womensmarch for disabilities because we are often a group of people that go unheard and unseen. I also want to bring awareness to the many chronic conditions that can disable a person no matter who they may be. Nobody is immune from disability, and that’s why we need an administration that…

We WILL Fight Back!

#womensmarchupandnorthernmi  I’m marching because I have a genetic condition called Ehlers Danlos Syndrome; our awareness ribbon is ‘zebra striped.’   Republicans are determined to pass legislation, sooner or later, that allows insurance companies to charge more for pre-existing conditions, extra charges none of us can afford.  They also want to privatize Medicare, a program I paid…

Medicaid saved my life

I am a 37-year old working woman with erythromelalgia, a debilitating neurovascular condition that causes severe pain. The pain interferes with daily activities, especially sleep, which increases other symptoms I have as a result of my cancer and its treatment. On a daily basis, I deal with pain, severe muscle weakness, nausea, headaches and more,…